Comments on: New Community http://burltek.net/lemonade/2008/09/20/new-community/ When Life Gives You Lemons... Fri, 13 Feb 2009 06:21:40 -0700 http://wordpress.org/?v=2.8.6 hourly 1 By: Kim http://burltek.net/lemonade/2008/09/20/new-community/comment-page-1/#comment-13 Kim Fri, 17 Oct 2008 01:03:22 +0000 http://burltek.net/lemonade/?p=49#comment-13 I'm yet another person who found you through Hope Square! I was fascinated to read your blog because I'm at 18% kidney function and have been waitlisted for a kidney since April 2 this year. My wait time is expected to be a couple years, so it is possible that I'll need dialysis before transplant (fingers are crossed it won't be necessary). The info you shared about your fistula is helpful. I've read about them, but not from a person who is describing her firsthand experience. I'm one of those people that likes to know what it's REALLY like. I was wondering at what point a fistula is recommended (i.e., percentage wise). So, for me to see you're at 13% and you've just gotten your fistula is encouraging to me. Thanks for sharing your story. I'll be sure to check back in to see how things are going for you. Be well. I’m yet another person who found you through Hope Square! I was fascinated to read your blog because I’m at 18% kidney function and have been waitlisted for a kidney since April 2 this year. My wait time is expected to be a couple years, so it is possible that I’ll need dialysis before transplant (fingers are crossed it won’t be necessary). The info you shared about your fistula is helpful. I’ve read about them, but not from a person who is describing her firsthand experience. I’m one of those people that likes to know what it’s REALLY like. I was wondering at what point a fistula is recommended (i.e., percentage wise). So, for me to see you’re at 13% and you’ve just gotten your fistula is encouraging to me.

Thanks for sharing your story. I’ll be sure to check back in to see how things are going for you. Be well.

]]> By: hburleson http://burltek.net/lemonade/2008/09/20/new-community/comment-page-1/#comment-12 hburleson Fri, 03 Oct 2008 02:27:20 +0000 http://burltek.net/lemonade/?p=49#comment-12 Thank you Karyn, Bob and Marlene! It's such a comfort to know that we are not alone in this crazy life of PKD. Thank you Karyn, Bob and Marlene! It’s such a comfort to know that we are not alone in this crazy life of PKD.

]]> By: Marlene http://burltek.net/lemonade/2008/09/20/new-community/comment-page-1/#comment-11 Marlene Thu, 02 Oct 2008 14:44:01 +0000 http://burltek.net/lemonade/?p=49#comment-11 Hi! I also came across your blog through Hope Square. I am the wife and mom of PKDers who were both diagnosed in 2007....it was a really difficult year for me emotionally but I thank G-d that they are both doing well and that I am doing better too! Anyway, I just wanted to thank you for sharing your story! Hi! I also came across your blog through Hope Square. I am the wife and mom of PKDers who were both diagnosed in 2007….it was a really difficult year for me emotionally but I thank G-d that they are both doing well and that I am doing better too! Anyway, I just wanted to thank you for sharing your story!

]]> By: Bob http://burltek.net/lemonade/2008/09/20/new-community/comment-page-1/#comment-10 Bob Wed, 01 Oct 2008 02:05:12 +0000 http://burltek.net/lemonade/?p=49#comment-10 Hello. I came across your blog through your pointer on the Hope Square web site and enjoyed reading your story. As the husband of a PKDer myself, I can related to many of the feelings expressed. I maintain a list of PKD-related blogs on my own blog and plan on adding yours to my list. Take care, Bob Hello. I came across your blog through your pointer on the Hope Square web site and enjoyed reading your story. As the husband of a PKDer myself, I can related to many of the feelings expressed. I maintain a list of PKD-related blogs on my own blog and plan on adding yours to my list.

Take care,

Bob

]]> By: Karyn http://burltek.net/lemonade/2008/09/20/new-community/comment-page-1/#comment-9 Karyn Mon, 22 Sep 2008 00:02:43 +0000 http://burltek.net/lemonade/?p=49#comment-9 I love the name of your blogging site! I think you've hit the nail on the head in our PKD world...and what a huge world it is! Frankly I'd rather use those lemons for a cool, icy, tropical drink filled with something alcoholic that isn't all that good for us, but hey....for now we'll just learn to make lemonade! I'm sure I'll see you around Hope Square! I love the name of your blogging site! I think you’ve hit the nail on the head in our PKD world…and what a huge world it is! Frankly I’d rather use those lemons for a cool, icy, tropical drink filled with something alcoholic that isn’t all that good for us, but hey….for now we’ll just learn to make lemonade! I’m sure I’ll see you around Hope Square!

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