Comments on: Timelines? Phooey!

By: Causes Of Acute Renal Failure

Causes Of Acute Renal Failure — Thu, 04 Dec 2008 02:24:40 +0000

Hi, I found your blog via Google while searching for causes of acute renal failure and your post regarding es? Phooey! | The Lemonade Stand looks very interesting for me

By: hburleson

hburleson — Sun, 23 Nov 2008 10:41:54 +0000

Coach, I’m afraid I didn’t make myself clear in the post. I’m not claiming to have any power over this disease, only a certain level of control over my own feelings. I could sense myself sliding deeper and deeper into depression, and decided to try and stop the spiral by giving myself a good talking to.

I believe there is some value in the power of the mind, not that I am refusing to go on dialysis, but I know that attitude is part of the doctor’s evaluation of one’s need for ramping up the treatment. I don’t want my mental state to speak more loudly than my physical state, hence the claim that I “don’t have time for dialysis.”

Thank you for engaging in the conversation.

By: Coach Richie Perl

Coach Richie Perl — Fri, 21 Nov 2008 18:48:36 +0000

Hello, Heather!
You don’t know me, but I know you. I have been corresponding with Glynn in HopeSquare.
Your attitude is interesting to me. Your timeline doesn’t allow for dialysis.
I am sincerely curious. What lets you know that your disease operates on your timeline? If you can tell me that, a heck of a lot of people might be interested. In fact, you could probably make a lot of money!
I am not being flippant! Before I went on dialysis, I was constantly nauseous, and could barely get through a day’s work. Iwas injecting myself with epo, and realyycouldn’t travel. My bones were so weak, that if I merely stubbed my toes, I would have a painful bone bruise that would last for weeks, making standing on the New York City subway extremely painful.
If you know how to avoid these kinds of problems, please publicize it!
BTW, when I went on dialysis, those problems went away.
Peace!
CoachRichie

By: hburleson

hburleson — Mon, 17 Nov 2008 10:29:43 +0000

Kathy, thanks for your uplifting comments. I’m trying to take this one day at a time, and your words are a great help.

By: Kathy

Kathy — Sun, 16 Nov 2008 14:29:02 +0000

So your worried about dialysis? Well don’t be. I just think you should reconsider the Peritoneal dialysis. I was on it for 2 1/2 years and just recently (11/5/08) had my transplant. I did hemo dialysis first then switched to PD and I can say first hand that it is much healthier for your body and you will feel so much better then you do even now and when your on Hemo. The hemo dialysis to me was extremely depressing because you were there with very sickly people that come in by ambulance, noone wanted to talk, noone was happy. Yes you have to do PD every night but the pro’s outweight the cons. If I ever have to do this again I wouldn’t hesitate to do PD again. I even went on a cruise during my time on dialysis. Was great, carried my machine, they delivered my solution right to the room on my ship and I had the time of my life. I never let the PKD thing get me down I wouldn’t let it beat me. I was beating it. My mom passed away from this disease, my sister had a transplant in 2/06 and my niece was diagnosed at 14 yrs of age. Just reconsider your options I know if you really put your mind to it nothing will stop you from living a somewhat normal life. Dialysis was like a 2nd nature to me and actually seems weird I don’t have to do it any longer. At least think about it you will feel so much better then going on Hemo I promise you. Good luck in whatever you decide. I hope to get a response from you and keep up the blog~ it was great